I hate to say that this is not eye opening to me. Honestly it makes me sad that we are failing our patients. We must do better with everything: care coordination, making the patients feel safe, etc. It is what we owe them at the least. The patient perspective is so important...they are going through the disease and treatment. I can empathize with them but I do not know what it is to be on dialysis myself. We need to listen to our patients to improve on what they need...not just from a medical standpoint
Thanks Paul. Appreciate you sharing, you certainly know these realities better than most. Thank you for continuing to advocate and contribute to this mission. One interesting finding was the number of home patients included in the survey - more on that soon.
![Signals From [Space]](https://substackcdn.com/image/fetch/w_36,h_36,c_fill,f_webp,q_auto:good,fl_progressive:steep,g_auto/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa4736f49-6a20-4fd6-a3de-d48cb4b105f2_375x375.png)
![Signals From [Space]](https://substackcdn.com/image/fetch/e_trim:10:white/e_trim:10:transparent/h_72,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2efc1ef1-ba0b-4ca3-b9f6-a9a790da4b38_1344x256.png)
I hate to say that this is not eye opening to me. Honestly it makes me sad that we are failing our patients. We must do better with everything: care coordination, making the patients feel safe, etc. It is what we owe them at the least. The patient perspective is so important...they are going through the disease and treatment. I can empathize with them but I do not know what it is to be on dialysis myself. We need to listen to our patients to improve on what they need...not just from a medical standpoint
Sadly, this comes as no surprise to me having spent 20 years in the clinic as a social worker. ICHD is unfortunately just a dreadful necessity.
Thanks Paul. Appreciate you sharing, you certainly know these realities better than most. Thank you for continuing to advocate and contribute to this mission. One interesting finding was the number of home patients included in the survey - more on that soon.